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Birthmarks and Vascular Anomalies Center
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Information About Vascular Anomalies
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Birthmarks and Vascular Anomalies Center
Resources for Patients

General Information

  • Birthmarks.com: This is a resource site for information about vascular and pigmented birthmarks. Community support is offered through an international membership and newletters cover a variety of related issues.

  • Hemangiomas and Vascular Anomalies: Orhan Konez, MD, vascular anomalies specialist, created this website to offer information about vascular anomalies and their treatment.

  • Vascular Birthmarks and Other Abnormalities of Blood Vessels and Lymphatics: Textbook chapter written by Drs Ilona Frieden, Odile Enjolras and Nancy Esterly.




Patient and Family Support Organizations

  • About Face International: An international organization which provides information and emotional support to individuals with facial differences and their families.

  • Children's Craniofacial Association: A non-profit organization dedicated to improving the quality of life for people with facial differences and their families. CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

  • Cleft Palate Foundation: A non-profit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects.

  • Let's Face It UK: The aims of the organization are to offer friendship on a one-to-one basis; to link families, friends and professionals; to assist people with facial disfigurement to share their experiences, struggles and hopes; to help them build the courage to face life again; and to provide continuing education to medical, nursing, and allied health professionals concerning the life-long needs of people with facial disfigurement.

  • Making Headway Foundation, Inc.: A not-for-profit organization dedicated to the care, comfort, and cure of children with brain and spinal cord tumors and other catastrophic neurological illnesses.

  • myFace: The mission of the National Foundation for Facial Reconstruction is to enable people, primarily children, with craniofacial conditions to lead productive, fulfilling lives.

  • National Organization for Rare Disorders: A unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases (diseases that affect fewer than 200,000 people in the United States) and assisting the organizations that serve them.

  • Sturge-Weber Foundation: The Sturge-Weber Foundation's mission is to improve the quality of life for individuals with Port Wine Stains, Sturge-Weber Syndrome and Klippel-Trenaunay Syndrome by providing worldwide education and support and by facilitating research that could ultimately lead to a cure.

  • Vascular Birthmarks Foundation: An international charitable organization that provides support and informational resources for individuals affected by hemangiomas, port wine stains and other vascular birthmarks and tumors and sponsors relevant research and promotes physician education.




Other Vascular Anomalies Centers

 



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  • Updated: September 30, 2014
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